Praying for Parker

Trach-Vent Clinic

Guess where we are off to today? Yup. Trach-Vent clinic. Which is almost as nervous making as a cardiology appointment. Almost. It’ll be a long day. Any and all wishes for a successful visit and being able to leave feeling hopeful are greatly appreciated...

Published Wed, Jul 14 2010 7:56 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, trach, vent

What’s In YOUR Garden?

We’ve done a something a little different in our gardens this year. Instead of filling our side gardens with flowers and herbs, we decided to plant way less flowers and plant different varieties of winter squash. Creating a blenderized diet for...

Published Tue, Jun 29 2010 8:36 PM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Garden Goddess, blenderized diets, frugal living, gardening, dehydrating foods

One Week and Counting

Next Thursday is Parker’s Nissen and trach reduction surgery. They are throwing a few other goodies in there as well, cause as long as he’s under a general anesthesia they might as well. Oh. Yeah. He’s going to be under general anesthesia...

Published Thu, Dec 10 2009 12:21 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Special Needs, surgery, prayers, Nissen

Still Crazy

We’re still here. Still kinda lost. Fearful. I’m having a hard time getting my mojo back. We took Parker up for his Chest CT only to discover he won’t stay still enough for the procedure. So we go back up on Monday for a sedated Chest...

Published Mon, Oct 19 2009 8:30 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life

Fifty-one……

It’s funny how when I woke up today a brand new fifty-one, I didn’t really feel that much different than I did at twenty-one. Okay, so my left knee is giving me fits and I don’t sleep as well as I used to, but you get my...

Published Sun, Jul 15 2012 10:54 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, miracles, faith, Family and Friends, birthday

What the garden gives.

This year’s garden was……well, interesting. With Parker sick so much this season there just wasn’t time to weed and make pretty. I’ll admit, I like straight weed free rows reminiscent of something you might find...

Published Sat, Oct 06 2012 6:15 PM by Praying For Parker

Filed under: backyard gardening, Victory Garden, graditude

Twitter Party: The Organized Cook Weekly Meal Plan

What do you think of when you read the words dinner time? I think of once a month Costco runs. Couponing. An ever shrinking grocery budget. And how tired I am of cooking the same old thing over and over again. It’s stressful, this nightly thing...

Published Mon, Oct 03 2011 1:28 PM by Praying For Parker

Filed under: Life With Special Needs, twitter party, Toni Spilsbury, weekly menu plans

Using Light Tables to Engage the Special Needs Learner

My love of yard sales is nothing new. I spend all winter long making lists of things I need to shop for during the summer…..all at rock bottom (and sometimes even free!) prices. One item on my list for this year was a light table for Parker. I thought...

Published Thu, Nov 10 2011 9:01 AM by Praying For Parker

Filed under: Special Needs Homeschooling, homeschooling, Discount School Supply, light boxes, Reading Activities, Math Activities, special needs learners

The IEP: What’s the best way to educate Parker

Yesterday we had Parker’s IEP. The elephant that was addressed: WHERE to educate Parker. The first thought was to bring Parker to school each day for an hour a day. Not in a typical classroom, mind you. Rather in a room by himself and a teacher...

Published Wed, May 18 2011 12:39 PM by Praying For Parker

Filed under: A Day In Our Life, homeschooling, IEP, homeschooling the child with special needs

Carl Wimmer: Making it harder to keep kids alive everywhere.

It all started with a tweet: @CarlWimmer: “It’s wrong for someone to confiscate your money, give it to someone else, and call that ‘compassion’. Carl, a Representative for the state of Utah, may have been a bit surprised to discover that that one tweet...

Published Mon, Apr 11 2011 9:36 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, medicaid, Carl Wimmer, Hypocrites

A Blendtec Review

We do a lot of blending around these joints. Parker’s blenderized diet. Smoothies for the athlete. Grinding grain for all the baking I do. But what blender does all of this? Thanks to Bendtec I now know. One blender to do it...

Published Tue, Oct 09 2012 4:40 PM by Praying For Parker

Filed under: Stuff We LOVE!, Blendtec

How we are teaching Parker to read.

The program I’m sharing today isn’t my original idea. It was taught to me by a spec ed teacher. I have seen it show up in various parts of other reading programs. I’ve taken the wheel, and instead of reinventing it, honed it to meet...

Published Mon, Dec 05 2011 7:59 PM by Praying For Parker

Filed under: Special Needs Homeschooling, special needs home school, homeschool, Reading Activities, learning to read

A bumGenius Cloth Diaper Review and Giveaway!

Jenn, the creator of bumGenius diapers and owner of Cotton Babies.com holds a special place in my heart. Not only are her diapers to drool over, but Jenn wants to advertise directly to parents of children with special needs. Parker’s Teeny Tiny...

Published Sat, Oct 24 2009 2:28 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!

A Scentsy Christmas Holiday Warmer: A Raffle For Parker

We had removed all of the fund raising stuff from Praying For Parker. We had thought that by adding a section for ads, we could generate a bit of revenue to go towards our Brave Hero’s medical fund. And if it didn’t…….eh, that...

Published Sat, Oct 03 2009 7:29 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, The HIGH Cost of Health Care

An Abudant Life

Being Parker’s Mom has taught me a lot of things. To be truthful, some of the greatest lessons I’ve ever gleaned have come from being the Mom of a medically fragile child with special needs. Like how it is untrue that in order to live an abundantly...

Published Sun, Nov 08 2009 6:54 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Fantabulous-ness, Garden Goddess

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