Praying for Parker

Things you never think about until you become a parent of a kid with special needs.

Have you entered the raffle for a Scentsy product of YOUR choice? All proceeds go towards Parker’s medical fund. _____________ I got to thinking today about all the things that occupy my brain, that never would have even crossed it before Parker...

Published Mon, Nov 01 2010 8:47 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Scentsy

Why We LOVE Betty Crocker!

Remember last year and Parker’s Make a Wish that came true? The one that Betty Crocker helped to grant? Parker’s adaptive swing set has brought him more joy than I can even express. Parker can make his own way up the Pirate plank. We use time...

Published Fri, Jul 23 2010 3:56 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Betty Crocker, Make A Wish

Loving Our Lucky Bums

Anyone who knows our Brave Hero also knows that the activity he loves the most is flying through the air in his play set from Make A Wish. Except, at the moment, the play set seems to be in the midst of a long winter’s nap. What’s a Brave...

Published Wed, Jan 05 2011 9:35 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Doing it Special Needs Style

The Freedom To Tell It Like It Is: Special Needs Style

I once heard of a woman, who after years of taking care of her disabled sister, made the following confession: “I hate having to cut her toenails. ” You could have heard a pin drop in the room after that simple sentence had been uttered. Because...

Published Mon, Dec 05 2011 8:49 AM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, special needs caregivers, medically fragile children with special needs

Invest in Your Future: Preserve the Harvest

Do you ever think about food? No, I don’t mean that chocolate bar, or your next Diet Coke. I mean real food. Fresh food. This year’s garden just waiting. So am I. Onion bulbs waiting to be planted. Maybe you think about growing food yourself...

Published Wed, Apr 20 2011 5:53 PM by Praying For Parker

Filed under: Garden Goddess, gardening, organic gardening, dehydrating, prepping, preserving the harvest, freezing fruits and vegetable, canning

How a Little Blue Wonder Saved My Life

Let’s be honest. A parent of a medically fragile child with special needs has enough to deal with without having to spend time cussing at, crying over, taking a sledge hammer to …uh….eternally trouble shooting their kids medical equipment...

Published Thu, Apr 21 2011 7:48 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, g-tubes, feeding pumps, Kagaroo Joey Feeding Pump, contiunuous feeds

Why I hate cardiology appointments.

Yesterday was the day. One of the 4 days a year I dread the most. Parker’s cardiology appointment. Don’t get me wrong. We love our cardiologist. We just hate what he has to say. Then there is the pesky fact that I often find myself trying...

Published Tue, Jun 28 2011 10:31 AM by Praying For Parker

Filed under: A Day In Our Life, chronic lung disease, atelectasis, asthma, right heart caths, oreck air purifiers, peri bronchial thickening

My foot prints on the path.

I’ve always been really transparent on this blog. Sometimes Reed has looked at me and asked, ‘are you sure you want to share that?’ I’ve shared because, well…. 1) For those who might be contemplating ending the life of a...

Published Mon, Jan 16 2012 10:03 PM by Praying For Parker

Filed under: Advocacy, down syndrome, Life With Special Needs, special needs parents

How to make a Snowman…..Parker Style

This winter has been one for the record books. Mild temperatures. Not enough snow for a Hero to be pulled around on his beloved sled. But the sick. Oh, have we had the sick. Parker is just now starting to get over his latest sinus infection. I love experiencing...

Published Thu, Mar 08 2012 8:23 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, snowman craft

My First Utah County Republican Caucus

I can’t believe how nervous I was last night. All I could imagine was that a caucus meeting would be a lot like politics on Facebook, where I’ve been accused of everything from holding a gun to a person’s head and robbing them via the...

Published Fri, Mar 16 2012 12:14 PM by Praying For Parker

Filed under: Advocacy, Politics of Special Needs

Medical Binders and the kid with special needs.

Our local children’s hospital is also a teaching hospital. We would take Parker in for an appointment and the nurse would have a zillion questions for us to answer about Parker’s history. Then a resident would come in. Same questions. By the...

Published Tue, Feb 28 2012 6:50 PM by Praying For Parker

Filed under: Life With Special Needs, medical binders

Communicating with my non-verbal kid.

I’ve changed things up with Parker’s communication invitations lately. They aren’t the the perfectly set up displays I once created. Instead I have a basket of toys that change every few days. They stay the way Parker last left them...

Published Wed, Feb 15 2012 7:22 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, Ipad Apps, communication skills

The Most Wonderful Time of the Year…

Come on. You know you feel the same way. The Johnny’s catalog comes and automatically it’s Spring. Even if it’s really only the beginning of January. What are you planting this year? Read More...

Published Mon, Jan 02 2012 12:12 PM by Praying For Parker

Filed under: Victory Garden, growing your own food, gardens

Looking for a Nursing Company……Again.

Parker’s nurse called off today. Again. Which in and of it’s self is no big deal, I guess. Nurses get sick. That is why there are on call nurses. Ever heard of ‘em? The rate that it happens at this agency has become a major issue in...

Published Thu, Jan 12 2012 10:57 AM by Praying For Parker

Filed under: Advocacy, medically fragile kids, home nursing

Stomach Viruses and the Kid with Special Needs

For most Moms the stomach flu comes with extra loads of laundry and puke bucket patrol. But for this Mama any kind of stomach issues come with the fear of aspiration.…..and aspiration pneumonia. This means that when Parker pukes his chances of the...

Published Fri, Mar 30 2012 10:25 AM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, sleep safe bed

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