Praying for Parker

Special needs children in a real life family..

Miracles. We’ve witnessed our share over here. My still being online falls under this heading. It took me a minute to accept this last miracle offered, but I’m glad I did. Because I agree, The face of our Brave Hero does brighten many people’s...

Published Mon, May 10 2010 8:12 AM by Praying For Parker

Filed under: Uncategorized

The Sick (part 123,908)

We are still here. Just busy. Trying to figure out why Parker’s sick only cleared up for ONE (yes, ONE!) stinkin’ day. It started creeping back yesterday. And it’s taken over again today. His oxygen requirements are up again. As is his...

Published Wed, May 12 2010 3:00 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs

Up to PCMC we go….

Taking our Brave Hero up to PCMC for a conference with his ENT as to why his resting heart rate is so funky and he is producing so much freaking snot. The stuff we are pulling out of Parker’s trach is flat our fascinating. (In a gross you out the...

Published Fri, May 14 2010 8:16 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs

What twenty bucks and a ton of elbow grease will get ya…

Remember THIS post? The one where I share how we are trying to open up enough space in Parker’s safe room so we can fit a twin sized bed in? Cause the whole mattress on the floor thing does not a good night’s sleep make. After MONTHS of looking...

Published Mon, May 17 2010 5:46 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, down syndrome, Special Needs, yard sales, furniture make over

What Would YOU Do?

How would YOU react if a shopper told a clerk with Down syndrome “You’re Absolutely Retarded!” We all know how I would react. They would still be cleaning up bits of this woman off the walls months later…. But what about you? Or...

Published Wed, May 19 2010 3:49 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, ABC News/What Would YOU Do

The Great Tobramycin Race

Preface: I had just put the finishing touches on this post when I heard the doorbell ring. I go to the door to find a gentleman who hands me an envelope while refusing to give me his name…or the name of who asked him to deliver this same envelope...

Published Sun, May 23 2010 9:37 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness

Melissa and Doug Winner!

I bet you think I forgot….. I really didn’t. It’s just that things around here have been…..uh….a little wild. Then the first winner chosen by Random.org never got back to me. So I had to choose a second. Sarah Marshall, come...

Published Wed, May 26 2010 7:13 AM by Praying For Parker

Filed under: Fantabulous-ness, giveaway, Melissa and Doug, Standing Easel

Down on Parker’s Farm….

We hung out at my parent’s house on Memorial Day. I love hanging out my parent’s house. The company, the food, the whole day….simply wonderful. My parents own almost 6 acres out in the boonies. This is the view from their back deck....

Published Thu, Jun 03 2010 9:13 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, farm life, Memorial Day, goats, chickens

The Great Escape….

Okay, a little behind the scenes info here: Parker has been going up and down the big fight of stairs that connects our upper and lower levels. It’s kinda fun to watch him go up and down them. He’s much more confident (and quicker!) going...

Published Sun, Jun 06 2010 11:22 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Fantabulous-ness, down syndrome, People I Love, escaping, pulmonary hypertension in children, learning to go up and down stairs

Sometimes It’s Hard.

There are parents of kids out there that look at me and decide that I must be some sort of fraudulent imitation of a real special needs parent. I don’t view Parker’s life as being as devastating as I should. Yeah. They view me as being suspect...

Published Mon, Jun 07 2010 8:08 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs

WW and SEW: Are We Having Fun Yet?

It can get kinda boring waiting for your big brother to sleep off the night before so you two can FINALLY play. Read More...

Published Tue, Jun 08 2010 7:19 PM by Praying For Parker

Filed under: A Day In Our Life, People I Love, special exposure wednesday, Wordless Wednesday

Yard Sales, Baby.

Between Reed working on Saturdays and the weather, I haven’t been out and about too often in my pursuit of yard sale treasure. The entertainment center for Parker’s room is (finally) done. It was a lot of work. A whole lot. Reed scrounged...

Published Thu, Jun 10 2010 8:06 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, garage sale, yard sale, thrifting, tag sale

Another Nurse Bites The Dust

We don’t get night nursing every night. And it isn’t unusual for a night nurse not to show. Or to say she came by and knocked and knocked and even left a message on the phone. Except nobody heard her knock nor the phone ring and no messages...

Published Sun, Jun 13 2010 9:29 PM by Praying For Parker

Filed under: down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, home health care, night nursing

And Away We Go!

We are heading up to Primary’s today. Parker has an appointment with Dr. Daftry, his Pulmo. This guy is amazing. He also has a last name that nobody knows how to properly pronounce. I’ve heard at least 20 variations of it. They told us to...

Published Wed, Jun 16 2010 6:51 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, A Day In Our Life, down syndrome, Special Needs, Primary Childrens Hospital, PCMC

We’re Having a Yard Sale!

Yup, this Saturday, June 19th you’ll find our front yard filled with all kinds of amazingness just waiting to come and live at YOUR house. heh. Seriously, we have some great stuff, lots of it donated by one of Parker’s sweet readers! Like...

Published Thu, Jun 17 2010 7:35 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, yard sales

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