November 2013 - Praying for Parker

Keep Calm, It’s Only Christmas

My parents tell a story that helps me to put Christmas in perspective. Both of my parents grew up in conditions of poverty. My Grandmother candled eggs for a living to provide for my mother. My father grew up in a house without running water. He and his...

Published Sun, Nov 03 2013 12:06 PM by Praying For Parker

Filed under: frugal living, Life With Special Needs, special needs parenting, keep calm it's only Christmas, Christmas and kids with special needs

His personality isn’t disabled.

I look over and watch as Reed tickles and blows raspberries on Parker’s stomach. Yeah, he’s got to be careful not to muck with the g-tube, but that’s no big deal. Parker still laughs with delight, lifting up his pajama top hoping for...

Published Wed, Nov 06 2013 9:07 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting

An Echocardiogram and other terrors.

I think I’m doing pretty damn good. Parker has a sedated echocardiogram on November 12th and I have yet to hyperventilate myself into an oblivion. That’s because I’m making Reed go up this time. Yeah. I wish. I know. An echocardiogram...

Published Thu, Nov 07 2013 8:33 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, pulmonary hypertension, Life With Special Needs, Hospital Frequent Flyer, medically fragile kids with special needs, speial needs parenting, echocardiogram

Birthdays and the kid with special needs.

A Facebook friend was asking about ideas for birthdays and the kid with special needs. Her son is a lot like Parker. Non-verbal. NPO. Not really into any specific characters. Can’t go anywhere for a birthday party because it falls smack dab at the...

Published Thu, Nov 07 2013 7:11 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, birthday party ideas

Pulmonary Hypertension Sucks

And it was almost like a tragedy to me. Oh, how I understand these words. I remember the day they told us that Parker had severe Pulmonary Hypertension. It was truly the worst day of my life. I HATE Pulmonary Hypertension. If you listen, this Mama explains...

Published Fri, Nov 08 2013 8:15 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, special needs parenting, down syndomre, heart disease, lung pressures

School pictures and other dumb ideas.

Parker’s Home and Hospital teacher asked if I would bring Parker in today for school pictures. My first thought was to decline. Pictures and Parker have been a not so fun experience the last couple of years. If I’m lucky enough to snap a cute...

Published Fri, Nov 08 2013 7:01 PM by Praying For Parker

Filed under: Life With Special Needs, special needs parenting, school pictures, special ed

Veterans Day

Parker isn’t the only Brave Hero in our family. Nope. He comes from a long line of Heroes, and a few horse thieves thrown in just for fun. Yup, Parker walks in the footsteps of my Dad for whom we are celebrating Veterans Day today. My Dad was the...

Published Mon, Nov 11 2013 8:03 AM by Praying For Parker

Filed under: Life With Special Needs, Family and Friends, Veteran's Day, William Henry Branson Harrison, Viet Nam War

The Gift of a Birthday

Sunday we celebrated. Our entire family gathered around the littlest Hodson boy to share good wishes, eat cake and open gifts. Afterwards we did what we always do when we celebrate this Hero’s birthday; we watched his slide show from when he was...

Published Mon, Nov 25 2013 7:44 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Birthdays, gifts

November 2013 - Praying for Parker

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