June 2013 - Praying for Parker - The Network of Care

Yard Sale Saturday!

My oldest daughter, Bailey and I are heading out for a couple of hours of hitting the yard sales. She’ll be outfitting a new home soon and is looking for a few things. I have my list in hand too! Yesterday I came across a box of wide mouth mason...

Published Sat, Jun 01 2013 8:09 AM by Praying For Parker

Filed under: frugal living, yard sales, prepping for hard times, Re-Purposing

Now I Can intensive therapy.

I’ve never been more shocked by my insurance company. Well, I have. But this is shocked in a good way, which I’m pretty sure has never happened before. I received a call telling me that after we paid out the deductible on Parker, and then...

Published Sun, Jun 02 2013 10:14 PM by Praying For Parker

Filed under: Life With Special Needs, Meeting a kid's sensory needs.

On Disneyland and a Colonoscopy

This kid graduated last week. There were tears of joy from the family. And tears of thanksgiving from more than one teacher. heh. For his graduation gift my kids all worked together to give Rigel an all expenses paid trip to Disneyland. Four of my kids...

Published Mon, Jun 03 2013 11:49 AM by Praying For Parker

Filed under: Life With Special Needs

Granny Bread: A Homemade Bread Recipe

Around this joint all the grocery stores sell Granny Bread. It’s soft, squishy, spongy white bread. People love it. I remember when you could buy it at the Day Old Store for a whopping .80 cents a loaf. Then all the grocery stores got together to...

Published Mon, Jun 03 2013 7:42 PM by Praying For Parker

Filed under: From Scratch, frugal living, DIY, Recipes, easy recipes, homemade bread recipe, cheap recipes, living on a dime, homemade bread

Living by the pulse oximeter

Several times a day and all night long Parker is hooked up to his pulse oximeter. This lets us know how high his oxygen concentrations are (needs to be over 95%), and where his heart rate is at. We’ve learned that by keeping a close eye on Parker’s...

Published Tue, Jun 04 2013 12:46 PM by Praying For Parker

Filed under: Life With Special Needs, Frequent Flyin' ar the PCMC, Hospital Frequent Flyer, pulse ox, Masimo, oxygen saturations, heart rate

A Brave Hero and his AmTryke!

It’s official. We received word today that Parker will be getting his adaptive bike! Yeeee-Haw! He’ll be getting the AmTryke ProSeries 1512 with Rear Steering Control. Over the Moon. That’s how we feel. Over the Moon with excitement...

Published Tue, Jun 04 2013 8:38 PM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs, adaptive bikes, AmTryke, ambucs

Fundraising and my medically fragile child with special needs

I know I’ve told this story before. But I’m going to tell it again. It helps to give a bit of insight into what it is like to raise a medically fragile child with special needs. When Parker was being life flighted up to PCMC the first time...

Published Wed, Jun 05 2013 6:09 PM by Praying For Parker

Filed under: Advocacy, fundraising, Therapy, Life With Special Needs, special needs parenting, fundraising ideas

The All Done Box

Parker has a bad habit of throwing things. Finished playing with a toy? Huck it. Done with that crayon. Huck it. Want Mom’s attention? Pick up something and huck it. Our solution to my kid’s budding career as a baseball pitcher? The All Done...

Published Thu, Jun 06 2013 10:31 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, Meeting a kid's sensory needs., All Done Box, SID, sensory issues

Brothers

These two are so very close. Two peas, one pod. Parker blows me off without a second thought in order to make his way to Rigel. It won’t be long until Rigel leaves on his mission to Seattle. I know it is going to be hard for Parker to not have this...

Published Fri, Jun 07 2013 9:17 AM by Praying For Parker

Filed under: Advocacy, down syndrome, brothers, Life With Special Needs, Family and Friends, more alike than different

Yard Sale Prices

I hit a few yard sales Saturday as I ran a few errands. I wasn’t able to get out until about noon, but often times hitting the yard sales later makes for better deals as people are ready to pack up and just want to get rid of what hasn’t sold...

Published Mon, Jun 10 2013 1:38 PM by Praying For Parker

Filed under: frugal living, thrifting, yard sale prices

The girl I used to be.

For Christmas my Mom gave me a beautiful, leather Fossil purse. It was an incredible color; somewhere between magenta and the perfect pink. I like my purses colorful and exciting. Dumb as it sounds it reminded me of the girl I used to be. I’m not...

Published Wed, Jun 12 2013 9:30 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, special needs blogger

On adaptive trikes and intense therapies.

Parker’s AmTryke adaptive trike arrived on Monday. Thrilled beyond belief pretty much describes how we’re feeling over here. Reed hasn’t had time to set it up yet because I’ve spent the last couple of days doing fun things like...

Published Wed, Jun 12 2013 3:38 PM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, special needs parenting, adaptive bikes, AmTryke, intensive therapy, Now I Can Foundation

When Panic Attacks

We had just been talking about how well he had been doing. Every morning we were waking up to clear sounding lungs after a night of beautiful oxygen and heart rate sats. We’d changed up Parker’s morning routine, having him outside in the early...

Published Fri, Jun 14 2013 8:43 AM by Praying For Parker

Filed under: Life With Special Needs, Now I Can Foundation

Homemade Cleaner Recipe

I had a bit of a moment of panic when I went to grab a few pictures of the ingredients of today’s homemade cleaner recipe and my camera wouldn’t work. Could you hear me hyperventilating from where you are? I wanted to cry and scream at the...

Published Fri, Jun 14 2013 9:49 PM by Praying For Parker

Filed under: From Scratch, frugal living, simple living, DIY, homemade cleaner recipe

Happy Father’s Day! Parker’s Dad Rocks!

Reed hates to have pictures posted of him. But how can Parker wish his Dad a Happy Father’s Day and tell the world how much he rocks without posting a few pictures of his Dad? Noticed how I wrote Parker posting pictures of his Dad. heh. Hopefully...

Published Sun, Jun 16 2013 2:40 PM by Praying For Parker

Filed under: Life With Special Needs, Family and Friends, AmTryke, Father's Day

June 2013 - Praying for Parker

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