May 2013 - Praying for Parker - The Network of Care

Making my way out the other end: Faith

Things have turned for the better around here. Parker is still producing grand amounts of snot, but we’ve been able to keep him home. The EKG is still on Monday, but my heart’s a little bit calmer about that. I tend to go through periods where...

Published Wed, May 01 2013 10:57 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith, Life With Special Needs, Family and Friends, special needs parenting, friendsthip

Cake Mix Play Dough Recipe

I’m always looking for new sensory experiences for Parker. It has taken years, but the kid finally appreciates a good play dough recipe. Our latest adventure? A Cake Mix Play Dough Recipe. I only had plain yellow cake mixes downstairs, however they...

Published Wed, May 01 2013 7:59 PM by Praying For Parker

Filed under: Special Needs Homeschooling, alphabet activities, Art Activities, Meeting a kid's sensory needs., tactile activities, oogey gooey lady, cake mix play dough recipe, playdough recipe, special needs home schooling

My kid has Down syndrome, thank you.

Yesterday Reed, Parker and I, along with enough medical supplies to bring a pack horse to it’s knees, sat in the waiting room of our Pediatrician. To keep Parker occupied I stood next to him on a stool as he looked at the fish swimming in the gigantic...

Published Thu, May 02 2013 8:38 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting

Prom and a Prayer

It seems like just yesterday that this young man was just a kid. Deep down inside I think he still is. But shouldn’t there always be a little bit of a kid in all of us? Friday was Prom. He and the beautiful young lady next to him had a fantastic...

Published Sat, May 04 2013 5:03 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, medically fragile children, prayers, Life With Special Needs, special needs parenting, Prom 2013

Intensive Therapy

Friday’s are the days Parker’s PT comes. She’s been working with Parker since he left Early Intervention. She told me that she won’t be coming to see Parker over the summer. He no longer qualifies for summer PT sessions. If truth...

Published Tue, May 07 2013 8:25 AM by Praying For Parker

Filed under: down syndrome, physical therapy, Life With Special Needs, Now I Can

Learning Curves and IEPs

There are huge learning curves when it comes to keeping a medically fragile kid alive. There are cracks to avoid falling through. Courage to develop. Confidence to build in the truth that you know your child better than anyone else. There are also huge...

Published Wed, May 08 2013 8:25 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, educating a child with special needs, Wright's Law, IEPs, Individualized Educational Plan

How to Catch a Rainbow Trout

Parker went to his end of the year class party. The theme? How to Catch a Rainbow Trout. Okay, so that wasn’t really the theme, but fishing was the activity of the day. Just a few minutes from our house is a fantastic public park with a stocked...

Published Fri, May 10 2013 5:38 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, Field Trips, fishing, field trip ideas, rainbow trout

Life doesn’t come with a manual, it comes with a mother.

I am blessed with a wonderful Mother. I’ve also been blessed with other women who have loved, mentored and mothered me as I’ve gone down this path of raising a medically fragile child with special needs. Women who have allowed me to cry on...

Published Sun, May 12 2013 10:53 AM by Praying For Parker

Filed under: Special Needs, Life With Special Needs, mothering, Mother's Day, mentors, medically fragile child with special needs

An authentically inspired life.

It is important me that I create an authentically inspired life in a world where she who dies with the most toys wins. I know I can’t do it all and need to seek contentment and find a more simple way of living that my meets my definition of beautiful...

Published Tue, May 14 2013 9:24 AM by Praying For Parker

Filed under: Special Needs, frugal living, Life With Special Needs, Inspired living

Parker’s IEP, Lobbyists, and dusting off my army boots.

We met for Parker’s IEP last week. Most of those at the table I truly love and owe an amazing amount of thanks too. Notice I said most. I had requested that the Occupation Therapist put into the IEP the need for an actual evaluation for Parker and...

Published Wed, May 15 2013 10:54 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Advocacy, IEP, Life With Special Needs, Now I Can, IHC, Lobbyists, Kangaroo Zoo

Therapy Ideas for Children from Yard Sales

I’m a woman on a mission to provide Parker with things he needs to meet his sensory needs, as well as physical (gross motor) and occupational therapy (fine motor) needs. I’m going to be seeking out therapy ideas for children from yard sales...

Published Thu, May 16 2013 6:03 PM by Praying For Parker

Filed under: down syndrome, yard sales, thrifting, Kid to Kid, physical therapy, Life With Special Needs, Re-Purposing, occupational therapy, OT, Savers, PT

Happiness is a Verb

What makes you happy? What are the things that are important in your life? Do you ever think about these kinds of things? I have lately. My conclusion? Happiness is a verb. While that may not be such a huge surprise to anyone, it has certainly given me...

Published Fri, May 17 2013 7:37 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Life With Special Needs, choosing happiness, special needs parenting, pay it forward, kindness

One income living with a medically fragile child with special needs.

I’ve always been a stay at home Mom who is well versed in one income living. There have been times when I’ve worked at home to bring in extra money. With Parker’s intense needs, trying to work while keeping him alive just isn’t...

Published Sun, May 19 2013 6:59 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, down syndrome, frugal living, simple living, Life With Special Needs, special needs parenting, living on one income

Two Ingredient Playdough Recipe

I love me a quick and easy playdough recipe. This one meets all the requirements. Plus, it is simple to put together AND it’s cheap. How’s that for a perfect summer time activity? You’ll need: 1 can regular shaving cream. (not the gel...

Published Mon, May 20 2013 7:48 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Art Activities, sensory activities, play dough, Meeting a kid's sensory needs., playdough, fine motor skills, play dough recipe

The worth of my son with special needs.

When Parker was just a baby, we took him to an Endocrinologist due to his growth issues. She looked over Parker’s records and then looked at me. As she stared me straight in the eye she tole me that Parker was a kid not only with severe pulmonary...

Published Tue, May 21 2013 8:48 PM by Praying For Parker

Filed under: Advocacy, Special Needs, Life With Special Needs, special needs parenting, Colin Brewer

May 2013 - Praying for Parker

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