March 2013 - Praying for Parker - The Network of Care

Easy Biscuit Recipe Better Than KFC’s

At our house we refer to it as “Quickie Chickie”, that famous drive through chicken that comes home to you in the iconic red and white box. Did you know that the very first Kentucky Fried Chicken was opened here in Utah? Yup. Biscuits and...

Published Thu, Mar 28 2013 8:43 PM by Praying For Parker

Filed under: From Scratch, Recipes, prepping for hard times, Biscuit recipe from scratch, Easy Buscuit Recipe, Biscuit recipe using butter, Kentucky Fried Chicken Biscuits, Clean Eating, Biscuits made without shortening

Crossing Midline

Crossing midline is one of the first skills Parker’s Early Intervention team worked with him on. For those of you who aren’t family with the term crossing midline, think of it as if there were a line running down the center of your body from...

Published Wed, Mar 27 2013 7:18 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Life With Special Needs, occupational therapy, Meeting a kid's sensory needs., right hand dependence, crossing midline, cross lateral development, brain gym

Lab Test Results

Lab tests results meaning have a way of putting a wee bit of terror into this Mama’s soul. While we no longer need to go every month, I still find myself thinking of big pretty bottles of nerve medications the day we are scheduled to have 6 big...

Published Wed, Mar 27 2013 10:10 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, right heart cath, Life With Special Needs, Frequent Flyin' ar the PCMC, special needs parenting, BNP, RDW, Neutrophils, lab test results, Differentials, RDWSD, Target cells, Ametamyelocyte

Rifton Adaptive Bikes

Rifton Adaptive Bikes are what our Physical Therapist suggested for Parker when I started talking about Parker learning how to ride a bike. Last May the PT brought out a smaller sized Rifton Adaptive Bike for Parker to use since there was nobody else...

Published Mon, Mar 25 2013 6:56 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Rifton Adaptive Bikes, teaching a child with special needs to ride a bike

Blenderized Diet for G-tube Fed Kids

Blenderized Diet for G-tube fed kids has been one of the best decisions we’ve ever made for Parker. This is one Brave Hero who simply didn’t gain on prepared formulas. I love how I can custom create his menu each and every day. I’m a...

Published Mon, Mar 25 2013 10:09 AM by Praying For Parker

Filed under: blenderized diet, blenderized diets, g-tube fed kids, special needs parenting, legumes for blenderized diets, grains for blenderized diets, nurtrition for kids with special needs

On the corner of Walmart

I needed to grab a few quick things the other day. As I headed to the shopping area I noticed three people asking for help on the corner of Walmart. It isn’t unusual for me to see someone on that corner of Walmart in need of food or money for fuel...

Published Thu, Mar 21 2013 9:26 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, special needs parenting, Walmart, Because I have been given much I too must give

Bring on the Hope: World Down Syndrome Day

Today is World Down Syndrome Day. 3:21 is a day of awareness and gratitude for the progress made in recognizing that a life with an extra chromosome is indeed worth living. It’s a day of bringing on the hope for the not so distant day my child and...

Published Wed, Mar 20 2013 9:45 PM by Praying For Parker

Filed under: Stuff We LOVE!, World Down Syndrome Day, Life With Special Needs, hope, Lots of Socks, 3:21

Just another kid on the block: World Down Syndrome Day

A year ago I woke up to the sound of my back door neighbor cutting down all the trees between his fence line and the stream that runs between our homes. Even though the trees were mainly scrubs, and even though they were on his property I had a few not...

Published Tue, Mar 19 2013 8:23 PM by Praying For Parker

Filed under: Advocacy, World Down Syndrome Day, Life With Special Needs, T21, Trisomy 21, National Down Syndrome Society, ndss, March 21

Banning Abortions Based On Down Syndrome

North Dakota is about to become the first state to take a stand and begin banning abortions based on Down syndrome. That’s right, North Dakota has decided that Down syndrome is not a reason to end a pregnancy and a life. As AP reports: “Fargo Republican...

Published Mon, Mar 18 2013 8:39 PM by Praying For Parker

Filed under: Advocacy, Life With Special Needs, Politics of Special Needs, Trisomy 21, special needs parenting, pro life, T-21, right to life, Representative Bette Grande, banning abortions based on Down syndrome

Sensory Schedule

What I really wanted to title this post was ‘there goes the rest of my life’, but that title doesn’t work well in the world of SEO, so instead my title is sensory schedule. Consider that my genuflecting to the powers of search engine...

Published Sun, Mar 17 2013 7:43 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Life With Special Needs, Meeting a kid's sensory needs., weighted lap pads, sensory diet, occupational therapy activities at home, stimming, joint compressions, big girl panties, weighted blankes, Sargent Steam, proprioception activities, vestibular activities, tactile activities, sensory schedule, abilitations, hand hugs

His Red Cheeks and Dry Cracked Lips

His red cheeks and dry cracked lips, are the bane of Parker’s winter…..and sometimes summer too. We’ve tried cool mist humidifiers. Lip balms, face creams, extra oil in his blenderized diet and more water boluses, but we’ve yet...

Published Fri, Mar 15 2013 8:56 AM by Praying For Parker

Filed under: Life With Special Needs, red cheeks, special needs skin care, dry winter skin, dry cracked lips

Saving money by shopping clearance.

One of my favorite past times while waiting for Spring to (finally!) arrive is to shop the clearance at a few of my local stores. I don’t go out of my way like some people or check daily, I can’t afford the gas that would cost. Still, saving...

Published Wed, Mar 13 2013 7:45 PM by Praying For Parker

Filed under: frugal living, Coupons, shopping clearance items, shopping on a budget, fruagal living

Special Needs Parenting

For the last couple of years the faucet of our kitchen sink has leaked. Not just a little under the sink leak. Nope. This leaked so badly that the ceiling in our family room has had a hole in it with a bucket on the carpet underneath to catch the drips...

Published Tue, Mar 12 2013 7:10 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Special Needs Homeschooling, down syndrome, homeschooling, home school, Life With Special Needs, special needs parenting, special needs blogger

Montessori inspired activities to do at home

I love creating Montessori inspired activities to do at home. I try to keep my eyes open through out the year and think outside the box for things I can use to help Parker make his way up the Sensory Pyramid. Some of my recent Walmart purchases include...

Published Mon, Mar 11 2013 7:28 PM by Praying For Parker

Filed under: Special Needs Homeschooling, home school, Life With Special Needs, Montessori inspired activities, Meeting a kid's sensory needs., special needs blogger

And then she said….

Wednesday was a pretty big day around here. It was the day that we share with others the damage done by using the r-word. Yes. Even if you aren’t talking about Parker, that word stings. Offends. Hurts. And makes you wonder why people are so set...

Published Sun, Mar 10 2013 8:42 PM by Praying For Parker

Filed under: Advocacy, spread the word to end the word, Life With Special Needs, end the r-word, respect, r-word.org

March 2013 - Praying for Parker

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