August 2012 - Praying for Parker - The Network of Care

Mark Ewing, Alaska’s kids with SN deserve so much better than you.

Mark Ewing, an Alaska State House hopeful, and self proclaimed torch carrier of conservative common sense, described one way to help a strapped state budget: ” the state should consider moves to stop providing education to “children that...

Published Tue, Aug 07 2012 7:50 AM by Praying For Parker

Filed under: Politics of Special Needs, Mark Ewing sucks.

Homeschool Idea Round-Up

I’ve been working putting together Parker’s home school curriculum. This year my goal is to have everything ready to rock and roll rather than doing month to month plans. Why? Because inevitably Parker gets sick, we have to stop...

Published Wed, Aug 08 2012 3:17 PM by Praying For Parker

Filed under: Special Needs Homeschooling

You’d think it would get easier……

You think it would get easier with each surgery Parker undergoes. It doesn’t. As a matter of fact I think the more times my kid is put under anesthesia the more stressful it is. Especially after reading the negative crap that goes...

Published Tue, Aug 14 2012 5:50 PM by Praying For Parker

Filed under: surgery, PCMC, Frequent Flyin' ar the PCMC

It’s not about Politics. It’s about CHARACTER.

It has nothing to do with whether you are a Republican or Democrat. It has EVERYTHING to do with your character. I’m talking about those who make kids like Parker the butt of their jokes. Allegheny County’s GOP chair and former...

Published Wed, Aug 08 2012 7:18 PM by Praying For Parker

Filed under: Politics of Special Needs, end the r-word, Jim Roddey

F is for Faith.

They came in the midst of a week I’d rather forget. A week filled with frustrations, worries and hurdles too big to see over. A knock at the door. Reed telling me that I had a group of friends (one being my beloved Blue-Eyed Girl)...

Published Thu, Aug 30 2012 8:58 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith, young womens values, lds

Faith.

When God Pushes You To The Edge Of Difficulty Trust Him Fully Because Two Things Can Happen Either He’ll Catch You When You Fall Or He Will Teach You How To Fly Here’s to us learning how to fly together, sweet boy. Read More...

Published Fri, Aug 17 2012 10:53 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, faith

Homeschooling a Medically Fragile Child with Special Needs

Homeschooling this year is going to require a new focus: Teaching a child with significant hearing loss. I’ve got calls in to Utah’s School for the Deaf and Blind as well as into Parker’s Home and Hospital teacher. Sad...

Published Wed, Aug 22 2012 8:45 AM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, Special Needs, homeschooling, Life With Special Needs

Today I’ll grieve. Tomorrow I’ll fight. Auditory brainstem results.

Today began with the alarm clock going off at 4:00 a.m. Parker had a surgery time of 7:30, with a check in of 6:00 a.m. Have I ever mentioned how I hate mornings? Especially mornings that begin in the middle of the night. There were...

Published Wed, Aug 15 2012 4:39 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Hospital Frequent Flyer, Auditory Brainstem Results

August

August at our house is pretty traditional. Brown Eyed Susans in their glory. Peaches making their way to the dehydrator and freezer. Frozen Blackberries. The usual squash take over….. And a beautiful little boy coming back from...

Published Thu, Aug 02 2012 11:48 AM by Praying For Parker

Filed under: down syndrome, stockpiling, Victory Garden, Family and Friends, ulcerative colitis

Why House Beautiful will never be calling me.

There’s a swing directly to your left as you walk into my home. It takes up the entire door way that goes into what is now Parker’s Home School Room. Straight ahead and to your right you’ll find my priceless collection...

Published Fri, Aug 03 2012 8:53 AM by Praying For Parker

Filed under: Life With Special Needs, medically fragile kids

How to freeze fruit for smoothies and blenderized diets.

I love being able to make Parker’s blenderized diet every day. I envision all the micro nutrients, immune boosting super powers and antioxidants heading straight where they are needed most. There’s not a lot I have control over...

Published Fri, Aug 31 2012 8:33 AM by Praying For Parker

Filed under: blenderized diet, Victory Garden, how to freeze fruit

Have you priced a can of green beans lately?

I picked up a grocery store sales flyer the other day and saw a can of green beans on special for .99 cents. One puny can. .99 Suddenly all the work to grow our own green beans didn’t seem so bad. We already have the jars, many of...

Published Mon, Aug 06 2012 7:29 PM by Praying For Parker

Filed under: blenderized diet, blenderized diets, frugal living, backyard gardening, Victory Garden

Persistence.

In all the resumes I’ve ever created I realized that I never once listed ‘Persistence’ as one of my skills. Cause my ability to be persistent as a Mama to a medically fragile kid with special needs has been a life saving...

Published Wed, Aug 22 2012 6:58 PM by Praying For Parker

Filed under: Life With Special Needs, Persistence

Oh, the places he’ll go…..

He has brains in his head, and orthos in his shoes. In spite of the tubes, or the stuff he must use, His mountain is waiting, Today is his day! Our Brave Hero is well on his way….. For he knows a secret he’s willing to spill, your attitude...

Published Sun, Aug 05 2012 5:59 PM by Praying For Parker

Filed under: Special Needs Homeschooling, home school, Life With Special Needs

August 2012 - Praying for Parker

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