June 2012 - Praying for Parker - The Network of Care

Come Tuesday….

He’s starting to feel better. Better is good. Because Parker’s SED rate was twice what it should be he’ll still be heading in for a colonoscopy and endoscopy this Tuesday. While he’s there they are going to go ahead with the BRAVO...

Published Wed, Jun 27 2012 5:45 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, surgery, PCMC, Frequent Flyin' ar the PCMC, Hospital Frequent Flyer

Life. Updated.

Yesterday started with Reed telling me that we had a bit of a situation on our hands. Oh, goodie. The fan on our furnace….the motor……was shot. Without the furnace motor the air conditioning doesn’t work. sigh...

Published Mon, Jun 25 2012 6:14 PM by Praying For Parker

Filed under: Special Needs Homeschooling, Life With Special Needs, Frequent Flyin' ar the PCMC

Poop, A Plan and Prayers

The Poop: Parker’s bowels are back in hyper overdrive. We go a few days where things are looking better only to turn around and be back at square one….. never ending bowel movements that could peel the paint off the walls. Parker’s...

Published Wed, Jun 20 2012 9:27 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, prayers, Life With Special Needs, Frequent Flyin' ar the PCMC

Dear Moms of Kids who use LTV Vents: HELP!

One signs the Zombie Apocalypse has arrived would be something going smoothly in our quest to keep our Brave Hero breathing these days. It must still be a long way away if my today is any indicator. You’ll remember, Parker finally has his sleep...

Published Wed, Jun 13 2012 2:58 PM by Praying For Parker

Filed under: Advocacy, LTV vent and heater carts

A Sleep Safe Bed Fit For A Hero.

What a day. After what seemed like a never ending battle, Parker’s Sleep Safer Bed was finally delivered. Boy, is it ever a beauty. We are trying to figure out the best placement. This room is actually bigger than the one Parker is...

Published Tue, Jun 12 2012 8:17 PM by Praying For Parker

Filed under: Stuff We LOVE!, Life With Special Needs

The Secret to Your Success

If I had a nickle for how many times someone has told me “I don’t know how you do it..”, I’d have a LOT of nickles. I bet many of you reading this have heard the same thing. I sometimes find myself thinking, yeah…...

Published Mon, Jun 11 2012 9:36 PM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, secret to success, choosing happiness

Eight entire seconds.

We spent most of last week in a doctor’s office. Odds are we’ll be doing the same thing this week. We only needed an 8 second sinus MRI. Eight seconds. Eight blinks. One breath in. One breath out. And my kid simply couldn’t...

Published Mon, Jun 11 2012 11:00 AM by Praying For Parker

Filed under: down syndrome, Life With Special Needs, Frequent Flyin' ar the PCMC, Hospital Frequent Flyer, BRAVO sinus procedure, sedated sinus mri

On Egos, Surgeons, and those trying to keep a kid alive.

Dear Surgeon, I brought Parker in to you on Thursday over concerns that he can so easily throw up over his Nissen. No gagging needed. Because of this I have had worries that Parker could also be refluxing over his Nissen. During our last appointment with...

Published Fri, Jun 01 2012 8:47 AM by Praying For Parker

Filed under: Advocacy, Nissen, reflux, aspiration, Life With Special Needs, Frequent Flyin' ar the PCMC

June 2012 - Praying for Parker

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