January 2012 - Praying for Parker

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Expectation and the Child with Special Needs

I’ve noticed lately that sometimes adults expect less out of kids with special needs than they do from typical kids. “Oh, that’s okay.” Don’t worry about it. I understand.” Um. No, it’s not. Not only will he pick...

Published Thu, Jan 19 2012 5:52 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs
Making Medicaid More Transparent: A Question From A Utah Legislator

Notice: if you choose to use my blog as your venue for trolling, your comment will be deleted and your ISP blocked. There is a difference between asking an honest question and making poorly researched accusations. I have spent much time working in behalf...

Published Sun, Jan 22 2012 12:26 PM by Praying For Parker

Filed under: Special Needs, medicaid, travis c. waiver, Life With Special Needs, Politics of Special Needs, transparency
Would it kill them to stop doing that? The R-word and it’s derivatives.

Is a lack of consideration the new black of today’s social culture? When I’m really in the mood to raise my blood pressure I’ll find myself reading the comments section of our local Utah newspapers, namely the comments following articles...

Published Mon, Jan 23 2012 7:27 AM by Praying For Parker

Filed under: Advocacy, down syndrome, spread the word to end the word, Life With Special Needs, r-word
The Red Thread and My Child with Special Needs

There is a Chinese folklore, which tells about the connection of family members. The Chinese say that there are invisible red threads that connect a newborn child’s spirit to all of the people that will be important in their life. As the child grows...

Published Mon, Jan 23 2012 8:03 PM by Praying For Parker

Filed under: down syndrome, Special Needs, Life With Special Needs, Family and Friends, The Red Thread
Even if the rest never follows.

Sometimes the once upon a time me sneaks up and reminds the me in the present of goals set and dreams once dreamt. She reminds me that debt and doctors and pulmonary hypertension were never supposed to be part of our future, and that when my kids finally...

Published Tue, Jan 24 2012 8:14 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, down syndrome, family, faith, Life With Special Needs
Snow Painting

It happened. Finally. It snowed. Snow. Finally Not so much as to be a hassle. Not too little to notice. Just enough. Read More...

Published Wed, Jan 25 2012 5:31 PM by Praying For Parker

Filed under: Life With Special Needs
What I feed my g-tube enhanced kid.

My g-tube enhanced Brave Hero has done so well on the blenderized diet I prepare for him daily. He lost a significant amount of weight from being sick so many times this season, but we are back up 2 pounds…..two more to go before we are back to...

Published Thu, Jan 26 2012 7:28 PM by Praying For Parker

Filed under: blenderized diet

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January 2012 - Praying for Parker

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Expectation and the Child with Special Needs

Making Medicaid More Transparent: A Question From A Utah Legislator

Would it kill them to stop doing that? The R-word and it’s derivatives.

The Red Thread and My Child with Special Needs

Even if the rest never follows.

Snow Painting

What I feed my g-tube enhanced kid.