April 2011 - Praying for Parker - The Network of Care

Things that make me want to smack someone…..

Parker’s been sick. Throwing up. Fever. Diapers from h@ll. We’ve been trying to get an appointment into GI for the last several days. Every time I call, I get a message telling me to leave a message. I leave the required message. Then...

Published Thu, Apr 28 2011 10:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, Carl Wimmer, Albuterol, xeopenex

How To Shop Without Spending Any Money

I know that most Mama’s aren’t shopping for next Fall’s clothes. Which is too bad, because NOW is an excellent time to score some free clothes. Yup. Free. I saved the summer clothes from last year and added a few other items Parker is...

Published Mon, Apr 25 2011 6:20 PM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Special Needs, down symdrome, frugal living, consignment shopping, Kid to Kid, thrift store shopping

You could learn a lot from a little kid with an extra chromosome…

It’s been quite the weekend. Parker’s been sick. Heartrate in the 80′s. Puking. Even though the kid has a Nissen. TWICE this week that I’ve KNOWN our HERO has aspirated. A prescription of Septra. An Enema. I woke up at 6:30 this...

Published Mon, Apr 25 2011 12:16 PM by Praying For Parker

Filed under: Special Needs Homeschooling, down syndrome, People I Love, home school, homeschool post, homeschooling a child with speical needs

All I need to know I learned from the Easter Bunny….

All I need to know I learned from the Easter Bunny Don’t put all your eggs in one basket. Everyone needs a friend who is all ears. There’s no such thing as too much candy. All work and no play can make you a basket case. A cute tail...

Published Sat, Apr 23 2011 1:21 PM by Praying For Parker

Filed under: Fantabulous-ness, down syndrome, Special Needs, Easter Bunny, Easter fun

How a Little Blue Wonder Saved My Life

Let’s be honest. A parent of a medically fragile child with special needs has enough to deal with without having to spend time cussing at, crying over, taking a sledge hammer to …uh….eternally trouble shooting their kids medical equipment...

Published Thu, Apr 21 2011 7:48 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, g-tubes, feeding pumps, Kagaroo Joey Feeding Pump, contiunuous feeds

Invest in Your Future: Preserve the Harvest

Do you ever think about food? No, I don’t mean that chocolate bar, or your next Diet Coke. I mean real food. Fresh food. This year’s garden just waiting. So am I. Onion bulbs waiting to be planted. Maybe you think about growing food yourself...

Published Wed, Apr 20 2011 5:53 PM by Praying For Parker

Filed under: Garden Goddess, gardening, organic gardening, dehydrating, prepping, preserving the harvest, freezing fruits and vegetable, canning

Montessori on the Cheap

There has always been something about the Montessori method of teaching that has appealed to me. Especially when working with children with special needs. One thing that held me back was the cost of many Montessori activities. Finally it dawned on me...

Published Mon, Apr 18 2011 7:22 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, montessori, homeschooling a child with specail needs, homeschooling with montessori

Spring Cleaning and Bridal Showers

It was as good a reason to get serious as any about my Spring cleaning. My oldest baby, Bailey Ann, is getting married. And my Mom wanted to host Bailey’s ‘old lady’ bridal shower here at my house. ( ‘Old Lady‘ shower verses...

Published Sun, Apr 17 2011 2:27 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love, spring cleaning, bridal showers

Spring Break Hodson Style

Reed usually works the week of Spring Break. No vacations here. I think most people would be surprised to discover that Reed works a second job on his days off from Alpine School District. This week though we also packed in some heavy duty get ready for...

Published Wed, Apr 13 2011 8:02 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy

How Could This Happen? The Story of Abbie Dorn

Four years ago Abbie Dorn gave birth to triplets. Shortly afterwards, medical mistakes were made that left Abbie severely brain damaged, unable to speak or eat or even move. A year later her husband divorced Abbie and stopped bringing the triplets to...

Published Mon, Apr 11 2011 7:36 PM by Praying For Parker

Filed under: Advocacy, Abbie Dorn

Carl Wimmer: Making it harder to keep kids alive everywhere.

It all started with a tweet: @CarlWimmer: “It’s wrong for someone to confiscate your money, give it to someone else, and call that ‘compassion’. Carl, a Representative for the state of Utah, may have been a bit surprised to discover that that one tweet...

Published Mon, Apr 11 2011 9:36 AM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, medicaid, Carl Wimmer, Hypocrites

Carl Wimmer and the man in his mirror.

It all started with a tweet: @CarlWimmer: “It’s wrong for someone to confiscate your money, give it to someone else, and call that ‘compassion’. Carl, a Representative for the state of Utah, may have been a bit surprised to discover that that one tweet...

Published Sun, Apr 10 2011 10:17 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, medicaid, Carl Wimmer

FEES, Fi, Fo, FUNK…

Today has been one of those days that you really wish wouldn’t have happened after all. It would have been much nicer to have gone from Wednesday straight to Friday, skipping Thursday all together. We took Parker up to PCMC for another FEES. Even...

Published Thu, Apr 07 2011 6:15 PM by Praying For Parker

Filed under: A Day In Our Life, PCMC, FEES study

Cheese Bread Like Red Lobster’s: A Recipe

You know those little cheese biscuits that they serve at Red Lobster? The type that you stuff your face with and ask for more in hopes of sneaking them home in your purse? Well, this recipe is just like those biscuits except in loaf form. It’s for...

Published Wed, Apr 06 2011 7:14 PM by Praying For Parker

Filed under: Totally Worth The Calories, Recipes, Red Lobster, simple bread recipes, Cheese bread like Red Lobsters

The Struggle To Get Your Kid To Eat

One of the biggest concerns I hear from Moms of kids with special needs is how can I get my kid to eat? Forget the healthy. They are just talking about getting calories into their kid. I gotta admit, this is where a g-tube is a blessing. Due to choking...

Published Tue, Apr 05 2011 6:20 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Doing it Special Needs Style, feeding specialists, nutrition for kids with special needs

April 2011 - Praying for Parker

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