November 2010 - Praying for Parker

Are YOU Smarter Than Your Insurance Company?

Non-verbal Kids Seeks iPad brought in a whole lot of discussion from parents who would also love to be able to provide their kid with an iPad. As I’ve done more and more research about an iPads\ doing what it’s $4,000 dollar counterpart does...

Published Sun, Nov 28 2010 7:27 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Advocacy

It’s the weight of the world.

Nothing can freak this Mama out more than a totally out of the blue, surprise call from Parker’s cardiologist. I was out when he called. And I had left my cell phone at home when he called that. Awesome. He’s wondering where we are in addressing...

Published Tue, Nov 09 2010 10:15 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, pulmonary hypertension, aspiration, glottal plasty

Things you never think about until you become a parent of a kid with special needs.

Have you entered the raffle for a Scentsy product of YOUR choice? All proceeds go towards Parker’s medical fund. _____________ I got to thinking today about all the things that occupy my brain, that never would have even crossed it before Parker...

Published Mon, Nov 01 2010 8:47 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Scentsy

Let’s Spend the Night with Parker

We’re down another night nurse. It’s kind of a sad story that isn’t mine to tell, but Reed and I find ourselves without a weekly night nurse. Again. Why, you may ask, do we even need a night nurse? Lemme walk you through a typical night...

Published Tue, Nov 23 2010 8:05 AM by Praying For Parker

Filed under: A Day In Our Life

Let’s hear it for the girl……

You know you’ve given birth to a really, really, really good sport when you can go downstairs, drag her out of bed, and video her signing and signing the latest Thanksgiving song on Parker’s hit list. What you won’t see are all the out...

Published Fri, Nov 12 2010 7:47 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Special Needs, People I Love, Turkeys, Thanksgiving songs, Thanksgiving crafts

Mom It Forward – Changing the World One Mom at a Time

Every Tuesday night #gno (Girls Night Out) hosts Twitter parties where women from all over the world join into on a topic of conversation right from their computer keyboards. Even after the actual party was over, women would still hang out tweeting under...

Published Wed, Nov 17 2010 11:14 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, Mom It Forward, #gno

Amish White Bread: A Recipe

Am I the only one floored at the price of bread these days? The ‘on sale’ price of my kid’s favorite sandwich bread is $2.00 a loaf. It isn’t unusual for our family to chomp their way through 8 loaves a week. $16.00 a week for...

Published Thu, Nov 04 2010 7:50 AM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, amish white bread, bread making, how to make bread

Homemade Breadsticks: a MUST TRY recipe!

This isn’t my original recipe. I pulled it off the internet a while ago. I wish I could remember from where, because then I would give credit where credit is due! When Reed was in college, he worked at the original Pizza Factory in Cedar City. As...

Published Mon, Nov 15 2010 7:59 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Totally Worth The Calories, homemade breadsticks, homemade pizza dough, Pizza Factory Breadsticks

DIY Therapy Ideas: PECS on the cheap…..

Sometimes I think parents of kids with special needs get taken. Have you seen of the prices found in many of the catalogs and websites that cater to the special needs community. *faint* I thought it would be fun to start highlighting a few DIY therapy...

Published Mon, Nov 08 2010 8:36 PM by Praying For Parker

Filed under: A Day In Our Life, Boardmaker Studio, DIY, speech therapy, Boardmaker, PECS

Hallmark Recordable Storybooks Giveaway!

Enter to win one of two Hallmark Recordable Storybooks AND take advantage of the great offers from Hallmark listed at the end of this post. ______ It’s official. Parker’s surgery date is set for the 7th of December. One glottalplasty to go...

Published Tue, Nov 23 2010 5:52 PM by Praying For Parker

Filed under: Fantabulous-ness, Stuff We LOVE!, Reviews and Giveaways!

Yeah. I ain’t that person.

The Sentiment comes in many forms: Those types of looks. You know, the ones implying you are using your kid to get out of something everyone else is being forced to do. They know those tubes and oxygen bottles are really just there to provide the ultimate...

Published Mon, Nov 29 2010 7:25 PM by Praying For Parker

Filed under: A Day In Our Life

Mornings With Parker

Parker’s been fighting the latest version of the creeping crud. Every morning, before his nap, and before bed, we do vest treatments with our Brave Hero. This helps to loosen up the junk in his lungs so that we can suction it out. Days that he is...

Published Tue, Nov 16 2010 8:42 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, chronic lung disease, vest treatments

Baking Alphabet Crayons

Okay. This is an oldie but a goodie with a bit of a twist. Recycled crayons? Been there, done that? How about recycled ALPHABET crayons? (Hey, even if you done this too, how about leaving me a little comment love commending my effort, eh?) Parker’s...

Published Sun, Nov 07 2010 5:31 PM by Praying For Parker

Filed under: Cheap and Easy, Special Needs, preschool, homeschool, art for children, recycled crayons, kid crafts

It’s funny how things work out…..

Yesterday I left a message on Cardio’s voice mail. I told him that I was still totally up in the air as to what we should do to address Parker’s airway issues. I told him that I had felt ENT had written Parker off as a lost cause. Several...

Published Wed, Nov 10 2010 10:21 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, aspiration, super glottal fold over, peace

The Unthinkable Option: Ending Medicaid

The unthinkable is receiving a lot of thought. Ending Medicaid. An option to balance state budgets. Powerful lobbyists on one side. Red ink on the other. And medically fragile kids with special needs stuck smack dab in the middle. But Medicaid has become...

Published Mon, Nov 22 2010 11:10 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, A Day In Our Life, Advocacy