November 2010 - Praying for Parker

Things you never think about until you become a parent of a kid with special needs.

Have you entered the raffle for a Scentsy product of YOUR choice? All proceeds go towards Parker’s medical fund. _____________ I got to thinking today about all the things that occupy my brain, that never would have even crossed it before Parker...

Published Mon, Nov 01 2010 8:47 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, Scentsy

Amish White Bread: A Recipe

Am I the only one floored at the price of bread these days? The ‘on sale’ price of my kid’s favorite sandwich bread is $2.00 a loaf. It isn’t unusual for our family to chomp their way through 8 loaves a week. $16.00 a week for...

Published Thu, Nov 04 2010 7:50 AM by Praying For Parker

Filed under: Cheap and Easy, Totally Worth The Calories, amish white bread, bread making, how to make bread

Special Needs Homeschooling: The Homeschool Post

There are many things I am passionate about. My family. My religion. Living on Less Dr. Pepper Gardening Advocating for those with Special Needs Being a huge pain in the butt for my local legislative representative. heh. I’m also passionate about...

Published Fri, Nov 05 2010 8:19 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Advocacy, special needs homeschooling, homeschooling, The Homeschool Post

Baking Alphabet Crayons

Okay. This is an oldie but a goodie with a bit of a twist. Recycled crayons? Been there, done that? How about recycled ALPHABET crayons? (Hey, even if you done this too, how about leaving me a little comment love commending my effort, eh?) Parker’s...

Published Sun, Nov 07 2010 5:31 PM by Praying For Parker

Filed under: Cheap and Easy, Special Needs, preschool, homeschool, art for children, recycled crayons, kid crafts

DIY Therapy Ideas: PECS on the cheap…..

Sometimes I think parents of kids with special needs get taken. Have you seen of the prices found in many of the catalogs and websites that cater to the special needs community. *faint* I thought it would be fun to start highlighting a few DIY therapy...

Published Mon, Nov 08 2010 8:36 PM by Praying For Parker

Filed under: A Day In Our Life, Boardmaker Studio, DIY, speech therapy, Boardmaker, PECS

It’s the weight of the world.

Nothing can freak this Mama out more than a totally out of the blue, surprise call from Parker’s cardiologist. I was out when he called. And I had left my cell phone at home when he called that. Awesome. He’s wondering where we are in addressing...

Published Tue, Nov 09 2010 10:15 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, pulmonary hypertension, aspiration, glottal plasty

It’s funny how things work out…..

Yesterday I left a message on Cardio’s voice mail. I told him that I was still totally up in the air as to what we should do to address Parker’s airway issues. I told him that I had felt ENT had written Parker off as a lost cause. Several...

Published Wed, Nov 10 2010 10:21 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, aspiration, super glottal fold over, peace

Let’s hear it for the girl……

You know you’ve given birth to a really, really, really good sport when you can go downstairs, drag her out of bed, and video her signing and signing the latest Thanksgiving song on Parker’s hit list. What you won’t see are all the out...

Published Fri, Nov 12 2010 7:47 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Special Needs, People I Love, Turkeys, Thanksgiving songs, Thanksgiving crafts

Nova Naturals Giveaway Winner

I contacted the first winner of this contest via random.org over a week ago. I waited for a reply. I got *crickets* So, back to random.org Parker and I went. And this time our winner is: Mamikaze! Read More...

Published Sun, Nov 14 2010 9:22 AM by Praying For Parker

Filed under: Fantabulous-ness, Reviews and Giveaways!, Nova Naturals

Homemade Breadsticks: a MUST TRY recipe!

This isn’t my original recipe. I pulled it off the internet a while ago. I wish I could remember from where, because then I would give credit where credit is due! When Reed was in college, he worked at the original Pizza Factory in Cedar City. As...

Published Mon, Nov 15 2010 7:59 AM by Praying For Parker

Filed under: A Day In Our Life, Cheap and Easy, Totally Worth The Calories, homemade breadsticks, homemade pizza dough, Pizza Factory Breadsticks

Mornings With Parker

Parker’s been fighting the latest version of the creeping crud. Every morning, before his nap, and before bed, we do vest treatments with our Brave Hero. This helps to loosen up the junk in his lungs so that we can suction it out. Days that he is...

Published Tue, Nov 16 2010 8:42 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, chronic lung disease, vest treatments

Mom It Forward – Changing the World One Mom at a Time

Every Tuesday night #gno (Girls Night Out) hosts Twitter parties where women from all over the world join into on a topic of conversation right from their computer keyboards. Even after the actual party was over, women would still hang out tweeting under...

Published Wed, Nov 17 2010 11:14 AM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, down syndrome, Special Needs, Mom It Forward, #gno

Non-Verbal Kid Seeks iPad

We were hoping. I had done so much research into the advantages of iPads for kids with special needs. Especially non-verbal kids with special needs. A category in which Parker firmly sits. Besides the health issues, what worries my heart the most is Parker’s...

Published Thu, Nov 18 2010 10:15 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, non-verbal, iPad, Technology and the Kid with Special Needs, Proloquo2GO

Today We Are Six

Our Brave Hero turned six early this morning. One of my happiest days ever, along with the birth of Parker’s older siblings. Before Parker I kept feeling as though somebody was missing. But six years ago today I knew that finally, we were all here...

Published Fri, Nov 19 2010 12:14 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, People I Love

The Unthinkable Option: Ending Medicaid

The unthinkable is receiving a lot of thought. Ending Medicaid. An option to balance state budgets. Powerful lobbyists on one side. Red ink on the other. And medically fragile kids with special needs stuck smack dab in the middle. But Medicaid has become...

Published Mon, Nov 22 2010 11:10 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, A Day In Our Life, Advocacy