September 2010 - Praying for Parker

A REALLY big Crayon Rocks.net Giveaway.

WHAT you’ve never heard of Crayon Rocks? Well, gather around as I share with you simply the best coloring tool for children. Crayon Rocks have vibrant colors and create beautiful textures. All natural SOY WAX crayons made from USA GROWN soybeans...

Published Thu, Sep 30 2010 12:18 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Stuff We LOVE!, down symdrome, giveaway, Reviews and Giveaways!, crayon rocks, soy crayons

Who needs Medicaid…….just host a BBQ to keep your kid alive.

Go HERE for a chance to win a Scentsy Jack O’ Lantern Warmer during Parker’s Scentsy Raffle! Our local Legislative Representative is convinced that Parker’s Medicaid Waiver could be replaced with the charity of neighbors and friends...

Published Thu, Sep 30 2010 10:25 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, Advocacy, I'm The Mama: Hear Me Roar!, Utah Legislature, travis c. waiver, Mediciad, LTV Vent

A Scentsy Raffle for Parker’s Medical Fund!

Scroll down to read about Parker’s Scentsy Raffle! Can you believe that while we have an OR scheduled for Parker next Tuesday, I have YET to hear from TPTB as to what exactly they are thinking of doing? Seems as though Cardiology thinks Parker’s...

Published Mon, Sep 27 2010 3:00 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, Advocacy, Stuff We LOVE!, down syndrome, Scentsy, raffle

KTVX Channel 4 Utah’s Kimberly Houk’s Interview

I was invited to be interviewed today by Kimberly Houck from KTVX Channel 4 here in Utah in regards to the new health care laws going into effect today. I’m not much of a being on television kinda gal, and declined. But I did spend a minute explaining...

Published Thu, Sep 23 2010 2:41 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, medicaid, KTVX Channel 4, Kimberly Houck, Tea Party

Embracing a blessing when you get one…..

No big decisions have been made yet. Although we do have an OR date on October 3rd. Even though we don’t know what exactly will be happening. Trying to talk to talk to doctors individually is nuts. So I asked our most wonderful of Pedi’s to...

Published Wed, Sep 22 2010 1:06 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, Fantabulous-ness, down syndrome, PH, blessings, PAH

And just like THAT the light goes out..

We had an amazing appointment with Second Opinion Pulmo. She pointed out that Parker is trached for his severely obstructive sleep apnea. Parker’s trachea collapses when he sleeps. If this hasn’t gotten better by now, it isn’t likely...

Published Fri, Sep 17 2010 3:10 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, pulmonary hypertension, Pulmo, right heart caths, lungs, ENT

Help me sort this out?

One of the hardest things about being the Mom of a medically fragile child (besides trying to convince your local Legislative Representative that more cuts to Medicaid Waivers will wind up killing your kid) is trying to discern the path to follow and...

Published Mon, Sep 13 2010 8:59 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, A Day In Our Life, down syndrome, Special Needs, apiration, aspiration pneumonia, botox

Everything Parker Knows He Learned at Home: Kindergarten

I’ve received many emails asking about information on how to home school a kid with special needs. I’m going to try to do a better job sharing ideas and a general curriculum on Parker’s blog. I don’t have a store purchased curriculum...

Published Thu, Sep 09 2010 9:07 AM by Praying For Parker

Filed under: A Day In Our Life, Special Needs Homeschooling, special needs homeschooling, homeschooling, homeschool

September 2010 - Praying for Parker

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