May 2010 - Praying for Parker - The Network of Care

Still Here…..

we are just trying to get our Hero healthy again. We’re on round 2 of Cleocin. Then a round of oral steriods. The results of which I wouldn’t wish on my worst enemy. If I actually had a worst enemy. I’m working on getting some order...

Published Tue, May 04 2010 3:05 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs

It gave up the ghost…

A few months ago Reed made some changes to our internet. Immediately after making these changes my laptop became obsolete. Oh, I tried sticking this little thing into the side of my laptop so that it could connect to our internet. It worked sometimes...

Published Thu, May 06 2010 9:26 AM by Praying For Parker

Filed under: Uncategorized, down syndrome, Special Needs

Special needs children in a real life family..

Miracles. We’ve witnessed our share over here. My still being online falls under this heading. It took me a minute to accept this last miracle offered, but I’m glad I did. Because I agree, The face of our Brave Hero does brighten many people’s...

Published Mon, May 10 2010 8:12 AM by Praying For Parker

Filed under: Uncategorized

The Sick (part 123,908)

We are still here. Just busy. Trying to figure out why Parker’s sick only cleared up for ONE (yes, ONE!) stinkin’ day. It started creeping back yesterday. And it’s taken over again today. His oxygen requirements are up again. As is his...

Published Wed, May 12 2010 3:00 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs

Up to PCMC we go….

Taking our Brave Hero up to PCMC for a conference with his ENT as to why his resting heart rate is so funky and he is producing so much freaking snot. The stuff we are pulling out of Parker’s trach is flat our fascinating. (In a gross you out the...

Published Fri, May 14 2010 8:16 AM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs

What twenty bucks and a ton of elbow grease will get ya…

Remember THIS post? The one where I share how we are trying to open up enough space in Parker’s safe room so we can fit a twin sized bed in? Cause the whole mattress on the floor thing does not a good night’s sleep make. After MONTHS of looking...

Published Mon, May 17 2010 5:46 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Cheap and Easy, down syndrome, Special Needs, yard sales, furniture make over

What Would YOU Do?

How would YOU react if a shopper told a clerk with Down syndrome “You’re Absolutely Retarded!” We all know how I would react. They would still be cleaning up bits of this woman off the walls months later…. But what about you? Or...

Published Wed, May 19 2010 3:49 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, ABC News/What Would YOU Do

The Great Tobramycin Race

Preface: I had just put the finishing touches on this post when I heard the doorbell ring. I go to the door to find a gentleman who hands me an envelope while refusing to give me his name…or the name of who asked him to deliver this same envelope...

Published Sun, May 23 2010 9:37 PM by Praying For Parker

Filed under: The HIGH Cost of Health Care, A Day In Our Life, Fantabulous-ness

Melissa and Doug Winner!

I bet you think I forgot….. I really didn’t. It’s just that things around here have been…..uh….a little wild. Then the first winner chosen by Random.org never got back to me. So I had to choose a second. Sarah Marshall, come...

Published Wed, May 26 2010 7:13 AM by Praying For Parker

Filed under: Fantabulous-ness, giveaway, Melissa and Doug, Standing Easel

May 2010 - Praying for Parker

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