March 2010 - Praying for Parker - The Network of Care

Tales from the organic co-op…….

We feed Parker a blenderized diet made up from as much organics as we can afford. You can read more about it here. Because we are working at adapting in place as one way to be able to afford our Brave Hero (who is one expensive kid) I also blog on ways...

Published Mon, Mar 01 2010 5:59 PM by Praying For Parker

Filed under: A Day In Our Life, Totally Worth The Calories, Stuff We LOVE!, blenderized diet, co-ops, rainbow swiss chard, organic

3.03.10

I know I’m preaching to the choir here, but I think this campaign rocks. What about you? Have you taken the pledge? Another great day coming up? 3.21.10 World Down Syndrome Day But I might be just a wee bit biased. You can also find Tammy and Parker...

Published Tue, Mar 02 2010 4:29 PM by Praying For Parker

Filed under: Advocacy, spread the word to end the word

The Language of Support: Special Needs Style

Support is such an important thing in the life of a family parenting a child with special needs. Many of us find ourselves feeling very alone and wondering if anyone else out there feels the way they do. You very quickly discover who your true friends...

Published Wed, Mar 03 2010 7:46 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, support

Not in a Twilight Kind of Way

I went in for some surgery last week. I figured it would take me a few days but that I would be back up and running lickety split. Does anyone even say lickety split anymore? Must be the drugs. Had a couple of things happen that weren’t on the original...

Published Sun, Mar 07 2010 11:41 AM by Praying For Parker

Filed under: A Day In Our Life, surgery, blood transfusion, twilight

In Which I Plead For Your Ideas

He’ll match them. He’ll identify them. He’ll sort them. He’ll stack them. But for the life of me I can’t get this kid to sign them. The tension mounts and I resort to pleading. Parker’s will is always the last one standing...

Published Mon, Mar 08 2010 8:11 AM by Praying For Parker

Filed under: Special Needs Homeschooling, Special Needs, homeschooling, red, sign language

What happens next?

While I wish I was one of those Moms who could stand proud and exclaim, “After declining any and all pain medication I not only assisted in the removal of the vast majority of my girly gadgets but ran a 10 mile marathon immediately after.”...

Published Mon, Mar 08 2010 8:00 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, Special Needs, I'm The Mama: Hear Me Roar!, Mamikaze

The First Swing of Spring

It was almost warm enough to swing last week. In swinging, as in horseshoes, almost is close enough. Is there something your kid loves, an activity that makes their heart sing? And for those of you who may be interested, Parker weighed in at an all time...

Published Tue, Mar 09 2010 8:30 PM by Praying For Parker

Filed under: A Day In Our Life, Fantabulous-ness, Special Needs, homeschool, swing, spring

A Bedroom Re-do: Special Needs Style

I’ve written before about Parker’s safe room. It’s the room Parker spent most of his first three years of life in as he circled the drain. The space where Parker hangs out when we need to keep him away from the rest of the family due...

Published Wed, Mar 10 2010 6:40 PM by Praying For Parker

Filed under: A Day In Our Life, Special Needs, redocorating bedroom

Life On Hold

Today’s guest post is compliments of Janis from Sneak Peek at Me. You will want to make sure that you add her to your blogroll. Trust me on this one, k? (And in case you are wondering if it still hurts, the answer would be YES! Told you I was a...

Published Thu, Mar 11 2010 8:49 PM by Praying For Parker

Filed under: A Day In Our Life, Advocacy, down syndrome, Special Needs, sneek peek

Here we go……again.

I’ve got a huge pot of millet on the stove. I’m making it to use in Parker’s blenderized diet. Millet has an 11% protein content and is GLUTEN FREE. I toasted it before I started it on a boil, and my house smells so good. While the millet...

Published Mon, Mar 15 2010 1:15 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, A Day In Our Life, down syndrome, Special Needs, blenderized diets, millet

Children Of Some Other God?

The things that blow me away the most are the stories I hear from families of children with special needs who have dared to take their child to church. Well, at least that is how they wound up feeling about it. Because, their kids, weren’t really...

Published Tue, Mar 16 2010 6:56 PM by Praying For Parker

Filed under: A Day In Our Life, down syndrome, Special Needs, I'm The Mama: Hear Me Roar!, religion, church

Please PRAY

Reed and our nurse just took Parker to American Fork ER. The idea is to get him stabilized and then most likely life flight him up to Primary Children’s Hospital. Parker really took a turn for the worse early this morning. You can hear his lungs...

Published Thu, Mar 18 2010 8:24 AM by Praying For Parker

Filed under: Uncategorized

Tender Mercies

Update: THANK YOU for the love and prayers. I talked with Reed about an hour ago. They’ve got Parker up on the trach pod at Primary Children’s Hospital. Parker’s needing his vent 24/7 in order to keep his sats at a decent level. The...

Published Thu, Mar 18 2010 8:26 PM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, The HIGH Cost of Health Care, down syndrome, Special Needs, Primary Childrens Hospital, medically fragile children, rsv

A Turn for the Worse

I just spoke with Reed. Parker’s temp has spiked drastically. Parker isn’t able to maintain his oxygen levels even with the support of his vent. I’m pretty sure they will be sending him to the PICU. I’m for any and all to circle...

Published Sat, Mar 20 2010 9:37 AM by Praying For Parker

Filed under: Holding On Tight To My Faith, Frequent Flyin At The PCMC, rsv

The Worth of the Life of One Brave Hero

Today’s x-ray did indeed show signs of pneumonia. So IV antibiotics were started. Several hours later and the Brave Hero has perked up. And he’s still in his room on the trach pod. No PICU. Which are the sweetest words I’ve heard in...

Published Sat, Mar 20 2010 6:10 PM by Praying For Parker

Filed under: Frequent Flyin At The PCMC, The HIGH Cost of Health Care, Advocacy, down syndrome, I'm The Mama: Hear Me Roar!, rsv, medicaid in Utah, snagis

March 2010 - Praying for Parker

Syndication

Recent Posts

Tags

Archives