In the early 1970s, the Cystic Fibrosis Foundation began tracking the health of patients with cystic fibrosis. What began as a modest data collection effort is today a comprehensive clinical registry of 26,000 patients. Caregivers and researchers use
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Read the complete post at http://healthaffairs.org/blog/2011/05/11/clinical-registries-the-opportunity-for-the-nation/
Posted
May 11 2011, 09:22 AM
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Health Affairs Blog