About A Voice for Long Distance Caregivers

A Voice for Long Distance Caregivers

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  • Caring from a Distance (CFAD) (http://www.cfad.org) is the nation's first non-profit organization devoted to using both the rich tools of the internet and social networking platforms to help support an estimated population of 6.9 million long distance caregivers. http://www.cfad.org launched in 2006 as a free, comprehensive resource for caregivers --- those in crisis, and those managing longstanding conditions. Founded, funded and staffed by individuals who experienced these challenges, our goal is to provide a gateway for site visitors to the wide spectrum of legal, financial, health and community services, tools, resources and information. This one-stop approach tries to link problems to solutions so users can zero in on available options and next steps.

My journey to my current position as the first Executive Director of Caring from a Distance (CFAD) is similar to many in the field.  Both passion and commitment to help others emerged from personal experience. In 1986, I wrote a short caregiver handbook called HOW TO CARE FOR YOUR PARENTS: A HANDBOOK FOR ADULT CHILDREN. My aim was to share with others lessons learned when trying to help our own parents who lived 150 miles away. Despite the benefits of a great education, my husband and I were clueless on what to do or how to find available help when confronted with the many health and coping challenges they faced. The book was one of the first primers in a young field. It was updated and revised four times. By the 1997 edition, W.W. was the publisher, and the title had morphed to HOW TO CARE FOR YOUR PARENTS: A PRACTICAL GUIDE TO ELDERCARE.  It was adopted as a resource by over 250 organizations around the country.

As a consultant in the field of eldercare, my prime interest evolved into issues of improving access to information.....Both through telephone directories, and, more recently, through the growing field of information exchange on the internet.

When contacted by the founder of Caring from a Distance and invited to help launch this new organization, I accepted the challenge and the great opportunity.  The best decision we ever made was choosing the Network of Care (http://www.networkofcare.org) as our technology partner.