June 2013 - The Joy of Autism - The Network of Care

The never-ending labyrinth

Adam’s jerking has increased as it was a few years ago… when we did the EEG and they said he had no seizure activity. My own anxiety feels seismic, and I wonder when all of this can explode, get worse, or if all my calming strategies for Adam...

Published Fri, Jun 28 2013 11:24 AM by Estée Klar

Filed under: Anxiety, Sensory Differences, Behaviours, Movement Disturbance, Medications, seizures

Autistic Freedom

I’ve been thinking and planning with Adam’s team the next stages of his learning and doing our map project. Every once in a while, I got down the dark whole of blog comments and blogs that consistently regard autism, even its many complications...

Published Wed, Jun 26 2013 8:29 AM by Estée Klar

Filed under: Activism, Anxiety, Autism and Learning, Development, Art, Autism and Intelligence, Acceptance, communication, Contributions to Society, Obsessions, Sensory Differences, Advocacy, Transitions, Safety, Parenting, Law, Politics, Behaviours, Wandering, school, Movement Disturbance, Computing/iPad, Ableism, ABA, Language

Mothers

Adam’s twitching has not fully abated and he was up all night…not something we’ve seen to this level for over three years now. He seems to be happier and I am working on keeping him calm – and there’s people who also help...

Published Fri, Jun 21 2013 12:38 PM by Estée Klar

Filed under: Parenting

Mapping Things Out

I must admit time heals anxiety. After the darkness comes the light, or is it the other way around? Well, the globe rotates. As Adam seeks knowledge by going through doors, I have always needed to calm my own anxiety through books. As I think more again...

Published Wed, Jun 19 2013 2:09 PM by Estée Klar

Filed under: Adam, Anxiety, Acceptance, Contributions to Society, Obsessions, Sensory Differences, Transitions, Safety, Behaviours, Wandering, Movement Disturbance

High Anxiety

Two years ago today, to the day, Adam bolted. He has lots of need to run through doors, especially at my parent’s condo. I remember it well… my dad coming back from an enjoyable walk, his hand sweaty then off Adam went; so fast my dad said...

Published Tue, Jun 18 2013 2:46 PM by Estée Klar

Filed under: Anxiety, Transitions, Safety

The Autism “Campus” and the Ableist Potential of “Potential”

Part of writing a blog and writing at all is the responsibility I tend to feel for supporting myself and others. Yet I have to tell you, since Adam was diagnosed with this ambiguous “autism” nearly 11 years ago now, anger and frustration and...

Published Mon, Jun 17 2013 7:53 AM by Estée Klar

Filed under: Activism, Institutions, Ableism

An Autistic Boy’s Life is Not A Paragraph

Adam has progressively better days since the basement flood and croup. When he seems anxious or derailed by life events I quickly engage everyone on Adam’s team – what has worked well for him is more predictability, gentle voices, activity...

Published Wed, Jun 12 2013 7:12 PM by Estée Klar

Filed under: Anxiety, Development, Transitions, Parenting, Books

How I Deal

So I’ve just put Adam to bed. We’ve had another challenging month – a major basement flood ruined his space where he jumps on a trampoline and has his OT equipment. It’s his space where he is king. It’s our second flood,...

Published Mon, Jun 10 2013 7:39 PM by Estée Klar

Filed under: Anxiety, Estee, Acceptance, Joy, The Joy Of Autism, autism, Parenting, Ableism, NEugenics

New Members of The Autism Acceptance Project (TAAProject)

TAAP New Members Meeting From Left to Right: Bev Leroux, Nelson Lui, Estee Klar, Todd Simkover, Michael Moon and Corina Becker. Today we had our first offline TAAP meeting since the re-launch of the website and we look forward to more work ahead. I’d...

Published Mon, Jun 03 2013 5:16 PM by Estée Klar

Filed under: The Autism Acceptance Project

The DSM V and Services

My copy of the DSM V is here. Ari Ne’eman made this address regarding the how the DSM V may effect autism services. I wrote this response this morning on the Facebook link: I agree with his point that suggests the hierarchy of disability and how...

Published Mon, Jun 03 2013 8:11 AM by Estée Klar

Filed under: DSM V, What is Disability?, (Dis) abilities

June 2013 - The Joy of Autism

Syndication

Recent Posts

Tags

Archives